This blog is small glimpses into my heart and soul - attempts to be transparent with friends, and sometimes, to myself. This is my safe place, where I can come and be purely Ness.

Family: If you found your way here, please do me a favor and don't poke through my closets, ok?

Showing posts with label doctors. Show all posts
Showing posts with label doctors. Show all posts

Thursday, October 27, 2011

The Not So Much of an Answer Answer

Results time. All the testing done, from the 17 vials of blood, to the horrible biopsy, to the not so horrible sonohysterography, and the other blood tests in between. I felt ill as I headed to the appointment today, nervous about what we would hear.
It really was a bit anti-climatic as we sat there listening to, "You're healthy. The biopsy came back negative. The sono didn't show anything wrong."
As it turns out the only things that have shown up are some slightly elevated hormone levels and a TSH (thyroid) that was on the high end of normal. A lower TSH level is more ideal for pregnancy, and the hormone levels are often connected to poly-cystic ovarian syndrome although I don't really have any other symptoms. Dr said she would recommend some cycle monitoring to keep an eye on the hormone levels to see what they were doing over a longer period of time, possibly thyroid medication, and then monitoring and progesterone once I got pregnant to give the baby an optimal chance. 
There is one test that we don't have results from yet, and that's the genetic testing. It is possible that those answers will come back and will reveal an issue that will have been the main cause of all our losses, and that will be daunting since as far as I know there won't be anything we can do about it. I might be wrong - I haven't looked into it that much, but what do you do if your genes are screwed up?
Since we are moving next week, Dr is going to give us a referral to a clinic in our new city, and we will see about pursuing some of these options. I'm still not really sure how I feel about all of this - the meds make me nervous, and knowing that there is still a pretty decent risk of miscarriage doesn't really help. I'm really not much farther ahead than I was before, and I want to be able to try again, I want to have another baby, but what if there are just more losses ahead for me? What do I do with that? How much more can I handle before I give up? How successful would all of this be and how much would it screw with me on the way?
There is so much going on right now, so I will wait until the new year to focus on all of this and figure out what exactly to do from here. 

Friday, October 7, 2011

Fall Frenzy

 Is there anyone out there who doesn't have a crazy life? Because mine just seems to go from craziness to craziness. There is so much going on and it's only going to get worse over the next weeks. So I know that despite really only having a tiny bit of time to write tonight, that moments like this will get harder to come by. This will be my attempt to get down at least the main details of everything that's going on, even though there is so much going in my head that I want to write and share, too.

Part One
My last post was all about how we were waiting on word for a job that Boy really wants. If you aren't following my Twitter feed, or just missed it - he got the job! It's looking like it will be an amazing job for him and an amazing place for our family. I'm pretty sure I'm very happy with it, but for some reason, our excitement over it has been a bit lacking. I think it may be that we are somewhat overwhelmed with all we have to do and I know Boy is feeling anxious about this new and more intense position. Also, saying goodbye to family and my home town certainly carries it's own sadness. Hopefully, once we get there and start unpacking and meeting people, we will have that enthusiasm come back!
Things were greatly dampened as the job offer came in when, it did in fact, include the condition that we only bring two cats. I wept and sobbed and decided along with my Boy, that this is what we would have to do. We needed this job and the hope and future that came with it.
While still very emotional, I asked Boy to send a request begging (yes, I used that word) them to please reconsider. I had little hope they would do so though, and began to inquire with friends if anyone knew of a good home for our poor kitties. I was especially worried about one girl, knowing it would be very hard to find a home for her and that we might have to make the decision to put her down. She's a skittish little girl who doesn't like anyone to come near her, pick her up, or generally exist. Oh, and she tends to pee on things. Who wants a cat like that? (Heck, most of the time we don't even want a cat like that, but she's our cat, she's part of the family, and that's what you do.)
Then - surprise. They really did consider our words and think about whether they could change this condition. And they did. We could bring them all! They did place a few conditions on that, but none of it was more than we offered to do in the first place. I am so very relieved to be free of the burden and sadness of finding good homes for four kitties. I am very grateful that we get to keep our family - and that I don't have to try to explain to Bug where are kitties are going.
Now to be completely honest (cause this is my honest space), it can be a huge pain to have so many cats. After spending a few days adjusting my mind to what it would be like to have only two cats, I am feeling anew the burden of six. Transporting them, vet bills, expensive food, keeping them out of bedrooms, cleaning up hairballs or vomit every couple of days, and of course, the joy of coming across something that has been peed on. I disconnected from them a bit during that time, and while I still love them and would hate to say goodbye, I can see how much easier our life would be without so many, and I'm closer to being willing to let go of them than I've ever been before. I'm not sure I would openly admit this to anyone in real life, but there it is.
Everything else on this storyline is going well. We put our house on the market and had an offer accepted, conditions waived, in one week. Our realtor said it had been a long time, since he'd seen a deal come together this quickly and smoothly. Just another confirmation we are on the right road.
We hired a U-Haul, the biggest they have, and then worried that we still wouldn't fit, so we got a trailer for it too. Boy was pretty anxious about driving this and happened to mention it to our new pastor/boss. He found someone to drive the six hours down here with him, in order to drive the truck back up the next day. How amazing is that? And I think this is only the first sign of what a great church family this is going to be.
We seem to be doing well with packing, as the boxes pile up to the ceiling, and it looks like we will be on track to be ready before we need to start loading the truck! (not always the case for us) We do have a few things going on that make this a bit more challenging for us though.

Part Two
For over a year now, I have been moving towards trying to find some answers as to why I'm having so much trouble carrying a baby. It took months to get in to see an OB/GYN, and if you've been reading, you know how much of a disaster that turned out to be. After that, I knew I needed to take greater measures, and I contacted a clinic in Toronto. I was still pretty nervous that I would get all the way down there and they would give me the same, "sorry, can't help you," that I'd already heard, but even on the phone they sounded friendly and professional, and I was assured more than once that my own experiences and home pregnancy tests would be taken seriously.
My appointment finally rolled around this past week. We did the 90 minute drive while my phone chirpped with the never ending, ever so valuable support from twitter friends, and I worried that it would be a huge gaffe taking Bug into a fertility clinic, despite the fact that I had been told that was just fine. We had a bit of trouble finding the clinic in the huge building, but with a bit of help, we arrived on time. I was immensely grateful to see that not only was it ok to bring a little one, but it was also expected, as Bug immediately spotted the a children's area off to the side.
Meeting with this doctor was like night and day from my last experience. She was quiet spoken, professional, friendly, had the ability to listen, took the time to explain things, allowed me time to ask questions, and most importantly of all, told me my early losses did indeed count in the puzzle of my fertility. She didn't necessarily know what they meant, might not be able to figure it out, but they were important and she was going to see what she could find.
She heard my story and then took me step by step through what she wanted to do, pausing to make sure I followed along and agreed with everything.  The first thing we did was blood work. I counted and they took seventeen vials of blood from me! I've done blood work before, but definitely never that much at a time. Next  week I go back down for an endometrial biopsy. She explained it as doing a pap, but going deeper to get a tissue sample. Since I really don't like doing paps, and have never had one that didn't hurt, I'm really not looking forward to this. I have two more blood work requisition forms and will have to call later to book a sonohysterography - an ultrasound where they use a bit of saline to expand your uterus to get a better look inside. Also not looking forward to that.
She's been very understanding of our imminent move and has worked to get as much of this done before we are four hours away from the clinic. It's making our days that much busier and giving me that much more stress, but I'm appreciative of her efforts to take care of us.
At the end of this month, maybe we will not only have a new home, a new city, and a new job; maybe we will also have some answers, some hope, and some help, giving us a chance to add another precious little one to this precious little family of ours.


If anyone has any info, tips, or encouragement on these procedures I'm looking at, please share! I'm quite intimidated by them and will welcome anything that would help them go smoothly.

Monday, July 18, 2011

Still Standing Still (as my heart aches)

Exactly two months ago, we finally got in to see a gynecologist. The plan was to ask for testing to see if we could find a reason that I have five miscarriages. It didn't go how we hoped. We did the month of cycle monitoring, and then had to wait another two weeks for a follow up. That was today. The result - pretty much the same thing that went through at the first appointment - only less professional.
He came into the room, told my son to get off the "couch" and told me I had to sit there. Um, there's a reason I'm not up there already. I hate sitting up there. It makes me feel like a child. It makes me feel more vulnerable and less like a person with rights. We're already a bit crappy at speaking up for ourselves, so we shuffle around to our "appropriate" seats. I'm really not sure why this is an issue since Bug sat up there last time, and I definitely did not. But, maybe it has something to do with the young man standing in the corner, who we haven't been introduces to. I have to only assume he's a student doing some shadowing, since I get a glimpse of a McMaster badge hanging around his neck. Now, I have nothing against a student being in this appointment, but surely it would only be common courtesy to introduce him and make sure we are comfortable with his presence. Whatever.
He asks me how I am, what can he do for me?
"Um, I would like some testing, please?"
"Well, I see you are not pregnant."
No kidding. Didn't we have this conversation already? I'm not going to try until we can rule out causes of the miscarriages.
We are interrupted by his yelling at my son to sit down. Excuse me? Where exactly do you get off? Boy politely asks him if he having a bad day, because really he wasn't like this last time. He says no he's not, but this isn't the place for tots. He should be in the waiting room and not getting into my things. You mean the completely sealed package we immediate took away and move him away from? I try to explain that I need my husband with me and we haven't got anyone to leave Bug with, so here he is. He dismisses the issue.
We return to the frustrating circular conversation about whether or not he can do some tests for us. One moment it seems like he can, the next not. Essentially he says he has to have proof to report to the government on why he's ordering the tests. Without proof, he can't order them. There are no miscarriages and no reasons to do testing.
He says if we are "afraid" to get pregnant, that that is a different matter and we can check that everything is ok. What does that mean? What's the difference? At the end he tells us he can give us a referral for genetic testing "on patient request." (What does that mean? It won't be covered?) We accept it, cause it's all we've got right now, but it's not enough.
I'm looking at a clinic in Toronto, and so far it sounds ok - they have a specialist who is researching repeat pregnancy loss, but I'm so nervous that we will drive all the way down there, with hope for help, only to be told the same thing, "Sorry, nothing we can do without proof."
I was so anxious about this appointment for exactly this reason, and now it's staring me in the face. I'm still not moving forward. It took me ages to decide to do this, ages to get the appointment, and nothing. I have to start a new route somewhere and try to keep hoping someone will do tests without us obtaining more "proof."

God, I don't understand. Please, send us people who will help, and who will do so with compassion. Please let us be able to find some answers without having to first get "proof."